Saturday 18 May 2013
Athea; Well done to the big number of Athea participants who recently travelled for the big Limerick Run. They did well and finished in good times as well as raising money for CRY The Adult Sudden Death Syndrome.
The Athea walking and jogging group are now well organised since they got together and continue each Tuesday and Thursday evening with their exercises from 7.30 to 8.15pm for beginners and 8.15 to 9pm for faster participants.
Limerick Leader West Edition – Leader 2
Saturday 6 April 2013
CRY: Preparations for the charity 10k walk/run and the 40k and 80k cycles are now well advanced. All proceeds will go to CRY which helps with Sudden Adult Death Syndrome. All the events start from Monagea Parish Hall on May 4. Registration for all events will take place in Monagea Hall on Sunday April 14 from 10.30am to 12.30pm. It is €5 to register for the walk/run and €20 for the cycle. If you have filled a sponsorship card or donated to a card we do not expect you to contribute again. It is important from an insurance point of view that all participants register. Wrist bands will be issued to all who register. The organisers would like to see as many as possible registering on the 14th April so as to avoid confusion on the 4th May. Completed sponsorship cards and money will also be collected on April 14th. If anyone would like to help with parking cars or act as a steward on May 4th please contact Tom Scanlon on 087 2140916. Anyone willing to help with the catering in the hall can contact Claire Scanlon on 085 1458214.
Monday 25th March 2013
The Jacinta O’Brien Plassey 10km walk and run will take place in the University of Limerick campus on Sunday, April 21.
All money raised will be donated to Cardiac Risk in the Young and Milford Care Centre.
The run is in memory of Jacinta O’Brien, a UL lecturer who died of sudden adult death syndrome some years ago.
Anyone who registers before April 7 will avail of an early bird entry of €20.00 the cost after this date is €25.
See www.jacintaobrien10k.com to enter.
Irish Sunday Mirror
31 March 2013
‘We Still don’t know why my Rory died .. but this might stop it happening to someone else’
By Adelina Campos
A mum who lost he son to sudden cardiac death has welcomed the decision to protect heel-prick DNA cards.
Sally Hegarty said the blood samples could one day save the lives of children with invisible disorders – like her late son Rory who died aged 16.
The HSE was last week instructed to reverse a decision to destroy more than a million samples taken from babies between 1984 and 2002.
Sally, 53, told the Irish Sunday Mirror: “Rory died four years ago, he was just a few weeks from his 17th birthday and, as yet, I still don’t definitely know the cause of his death.
“When they did a post-mortem, nothing showed up – his heart was perfectly normal.
“Everything was fine so they had to assume he died of SADS (Sudden Arrhythmic Death syndrome). He had a perfect heart structurally so we still can’t understand what happened.
“But I’m hoping with the heel prick card that holds his DNA, one day we will be able to find out the cause of his death through genetic screening.
“And in that way, I can have my other children screened to check if they have that gene.”
The South Dublin nurse recalled the moment when she found Rory lifeless in their home.
She said: “I went in to call him for school and he had died in his sleep. I was completely shocked. I just couldn’t understand how it could happen to a perfectly healthy child. It made no sense.
“Eventually, through the efforts of the SADS support group, we went for a family screening. My husband Dermot, my two teenage children and I all did a heart screening.
“My children are screened every year now and the more screenings they have, the less likely they are to have the condition but I still don’t’ know they don’t have it.
“Rory’s card has DNA and I know – because it’s been done in other parts of the world since 2010 – they can isolate the gene that caused his death”.
“When that’s done, my other children can be tested and until then, until I know they are safe, I won’t be happy.”
Sally said she was glad that the Government overturned a decision to destroy 1.6 million samples after a campaign led by the Irish Heart Foundation, the SADs group and cardiologist Dr Joe Galvin.
She added: “They made the right call. Out of those samples, some 1,400 deaths will be Sudden Cardiac Deaths so the cards could help over 1,000 families”.